Scientists from the Quebec Back Pain Consortium have developed an infrastructure for collecting longitudinal data. The cohort developed by the Consortium brings together more than 6,600 participants living with low back pain.
The platform provides various services such as:
recruitment and data
Recruitment
The Consortium can help you recruit participants by disseminating your project via newsletters intended for the general public. Another method is to put you in touch with participants who might be interested in your project (eg forwarding your invitation to our email distribution list).
Data access
Our database contains the following data: the Canadian version of the NIH minimum dataset, the DN4, a questionnaire about co-morbidities and the overall impression of change. This data has been collected on an ongoing basis since November 2018 from more than 6,600 participants living with low back pain at 0, 3, 6, 12 and 24 months. You can contact us to suggest a collaboration or make an access request.
Cohort construction
Online data collection tips
The Consortium can help you set up online research projects including consent procedures and data collection with tools such as REDCap.
Follow-up and retention tips
The Consortium relies on effective follow-up and retention monitoring tools and can help you to use them in in your project.
The experience acquired by the Quebec back pain consortium can greatly accelerate your projects and help you lay solid foundations for your cohort.
our project
our communications
- Our quarterly newsletter is intended for study participants. This describes the progress of the study and shares useful information.
- To learn more about our progress, you can consult our 2020-2021 and 2021-2022 progress reports intended for our partners in order to present the major advances of the project.
our presentations
- Jean-Sébastien Roy describes the Consortium at the Lunch And Talks (Video)
- Jean-Sébastien Roy describes the Consortium to Guylaine Tanguay (Video)
- Laura Stone, former director of the consortium, discusses the role of epigenetics in pain in this webinar given at the National Institute of Health (Video).
- Gabrielle Pagé presents the establishment of a new satellite project to study the impact of stress from COVID-19 on chronic low back pain (Video).
- Consortium 10 year anniversary video (Vidéo)
- Mathieu Roy presents his role in the consortium (Vidéo)
- Carolina Meloto presents the consortium (Vidéo)
- Carolina Meloto presents the Quebec Biobank on Low Back Pain, a satellite project of the the consortium (Vidéo)
our publications
- Adriana Angarita-Fonseca et al. The Canadian version of the National Institutes of Health minimum dataset for chronic low back pain research : reference values from the Quebec Low Back Pain Study.
Pain journal, February 2023 - Hugo Massé-Alarie et al. Low Back Pain definitions : effect on patient inclusion and clinical profiles
PAIN Reports, Mars 2022 - Kristina Amja et al. The Experience of People Living With Chronic Pain During a Pandemic : “Crumbling Dreams With Uncertain Futures”
Qualitative Health Research, June 2021 - Gabrielle Pagé et al. The Quebec Low Back Pain Study: a protocol for an innovative 2-tier provincial cohort
PAIN Reports, January 2020 - Anaïs Lacasse et al. The Canadian minimum dataset for chronic low back pain research: a cross-cultural adaptation of the National Institutes of Health Task Force Research Standards
CMAJ Open, March 2017
