The Chronic Pain Network is a pan-Canadian initiative that links patients, researchers, health professionals, educators and government policy advisors to learn more about chronic pain and share knowledge that can help those affected by it.
The Chronic Pain Network (CPN) is made up of people living with chronic pain. Their lived experience provides invaluable insight into the challenges faced by those living with this invisible disease. That’s why the CPN is helping to change the way pain research is conducted in Canada. Since 2016, the CPN has partnered in a wide range of research activities. The benefits of including people living with pain as partners in research are clear. When involved, they help to identify priorities, conduct research from a patient perspective, and create research results that ultimately improve health outcomes for our fellow Canadians.
There are some things that help with patient involvement in research: Involve them early and often. It is important to be educated at the beginning of the project and regular communication helps create a sense of community and ownership. Remove barriers by offering honoraria and expense reimbursement. This allows them to be fully involved, share their time and expertise, and commit to attending meetings and conferences. Having the chance to engage as a research partner also has benefits for people living with pain. The CPN opens doors for them to connect with other people living with pain. They learn together, from each other, share knowledge within a larger network and support each other more effectively. If you are considering engaging patient partners on your research team, as a person living with pain, it is suggested that you start small. Work together from the beginning to develop boundaries and expectations that will support the team’s success.
