{"id":7487,"date":"2021-09-15T10:56:31","date_gmt":"2021-09-15T14:56:31","guid":{"rendered":"https:\/\/qprn.ca\/services-dimplementation-de-cohorte\/"},"modified":"2026-04-16T11:53:03","modified_gmt":"2026-04-16T15:53:03","slug":"cohort-implementation-services","status":"publish","type":"page","link":"https:\/\/qprn.ca\/en\/cohort-implementation-services\/","title":{"rendered":"Data access and Cohort implementation services"},"content":{"rendered":"\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>Scientists from the <strong>Quebec Back Pain Consortium<\/strong> have developed an infrastructure for collecting longitudinal data. The cohort developed by the Consortium brings together more than 6,600 participants living with low back pain.<br>The platform provides various services such as:<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large bnw\"><img decoding=\"async\" src=\"https:\/\/qprn.ca\/wp-content\/uploads\/2021\/09\/Images-website4.jpg\" alt=\"\" class=\"wp-image-6748\" title=\"\"><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">recruitment and data<\/h3>\n\n\n\n<p><strong>Recruitment<\/strong><br>The Consortium can help you recruit participants by disseminating your project via newsletters intended for the general public. Another method is to put you in touch with participants who might be interested in your project (eg forwarding your invitation to our email distribution list).<\/p>\n\n\n\n<p><strong>Data access<\/strong><br>Our database contains the following data: the Canadian version of the NIH minimum dataset, the DN4, a questionnaire about co-morbidities and the overall impression of change. This data has been collected on an ongoing basis since November 2018 from more than 6,600 participants living with low back pain at 0, 3, 6, 12 and 24 months. You can contact us to suggest a collaboration or make an access request.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large bnw\"><img decoding=\"async\" src=\"https:\/\/qprn.ca\/wp-content\/uploads\/2021\/09\/Images-website3-1.jpg\" alt=\"\" class=\"wp-image-6750\" title=\"\"><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">Cohort construction<\/h3>\n\n\n\n<p><strong>Online data collection tips<\/strong><br>The Consortium can help you set up online research projects including consent procedures and data collection with tools such as REDCap.<\/p>\n\n\n\n<p><strong>Follow-up and retention tips<\/strong><br>The Consortium relies on effective follow-up and retention monitoring tools and can help you to use them in in your project. <\/p>\n\n\n\n<p><\/p>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>The experience acquired by the <a href=\"https:\/\/qprn.ca\/fr\/2020\/06\/le-rqrd-reunit-16-chercheurs-quebecois-et-forme-le-consortium-quebecois-sur-la-douleur-au-dos\/\" target=\"_blank\" rel=\"noreferrer noopener\">Quebec back pain consortium<\/a> can greatly accelerate your projects and help you lay solid foundations for your cohort.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">our project<\/h3>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1400\" height=\"724\" src=\"https:\/\/qprn.ca\/wp-content\/uploads\/2020\/06\/Publication_Douleur-lombaire2_EN-1400x724.png\" alt=\"\" class=\"wp-image-2064\" title=\"\" srcset=\"https:\/\/qprn.ca\/wp-content\/uploads\/2020\/06\/Publication_Douleur-lombaire2_EN-1400x724.png 1400w, https:\/\/qprn.ca\/wp-content\/uploads\/2020\/06\/Publication_Douleur-lombaire2_EN-768x397.png 768w, https:\/\/qprn.ca\/wp-content\/uploads\/2020\/06\/Publication_Douleur-lombaire2_EN-1536x794.png 1536w, https:\/\/qprn.ca\/wp-content\/uploads\/2020\/06\/Publication_Douleur-lombaire2_EN-2048x1059.png 2048w\" sizes=\"auto, (max-width: 1400px) 100vw, 1400px\" \/><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">our communications<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Our <a href=\"https:\/\/us4.campaign-archive.com\/home\/?u=519edf72adce27b423e2902ac&amp;id=be00699839\" target=\"_blank\" rel=\"noreferrer noopener\">quarterly newsletter<\/a> is intended for study participants. This describes the progress of the study and shares useful information.<\/li>\n\n\n\n<li>To learn more about our progress, you can consult our <a href=\"https:\/\/kdrive.infomaniak.com\/app\/share\/1927187\/ec2824a1-14d9-47da-b744-e94d79dcb4fb\" target=\"_blank\" rel=\"noreferrer noopener\">2020-2021<\/a> and <a href=\"https:\/\/kdrive.infomaniak.com\/app\/share\/1927187\/ffd91f29-e7d4-4039-964e-ba8b466ccb7e\" rel=\"noopener\">2021-2022<\/a> progress reports intended for our partners in order to present the major advances of the project.<\/li>\n<\/ul>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\">our presentations<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Jean-S\u00e9bastien Roy<\/strong> describes the Consortium at the Lunch And Talks (<a href=\"https:\/\/youtu.be\/aYu63L1hBEU\" target=\"_blank\" rel=\"noreferrer noopener\">Video<\/a>)<\/li>\n\n\n\n<li><strong>Jean-S\u00e9bastien Roy<\/strong> describes the Consortium to Guylaine Tanguay (<a href=\"https:\/\/www.youtube.com\/watch?v=zyRoWkIlQk0\" target=\"_blank\" rel=\"noreferrer noopener\">Video<\/a>)<\/li>\n\n\n\n<li><strong>Laura Stone<\/strong>, former director of the consortium, discusses the role of epigenetics in pain in this webinar given at the National Institute of Health (<a href=\"https:\/\/www.youtube.com\/watch?v=XkJFcxyVdGM&amp;t=2s\" target=\"_blank\" rel=\"noreferrer noopener\">Video<\/a>).<\/li>\n\n\n\n<li><strong>Gabrielle Pag\u00e9<\/strong> presents the establishment of a new satellite project to study the impact of stress from COVID-19 on chronic low back pain (<a href=\"https:\/\/www.youtube.com\/watch?v=ib87hQ1Ymrk&amp;t=129s\" target=\"_blank\" rel=\"noreferrer noopener\">Video<\/a>).<\/li>\n\n\n\n<li>Consortium <strong>10 year anniversary<\/strong> video (<a href=\"https:\/\/www.youtube.com\/watch?v=XMvdIWKDvw4\" target=\"_blank\" rel=\"noreferrer noopener\">Vid\u00e9o<\/a>)<\/li>\n\n\n\n<li><strong>Mathieu Roy<\/strong> presents his role in the consortium (<a href=\"https:\/\/youtu.be\/a3avu1QcCjk\" target=\"_blank\" rel=\"noreferrer noopener\">Vid\u00e9o<\/a>)<\/li>\n\n\n\n<li><strong>Carolina Meloto<\/strong> presents the consortium (<a href=\"https:\/\/www.youtube.com\/watch?v=J5ARqqk3QFs\" target=\"_blank\" rel=\"noreferrer noopener\">Vid\u00e9o<\/a>)<\/li>\n\n\n\n<li><strong><strong>Carolina Meloto<\/strong><\/strong> presents the Quebec Biobank on Low Back Pain, a satellite project of the the consortium (<a href=\"https:\/\/www.youtube.com\/watch?v=2vEvSmzYPUc&amp;t=16s\" target=\"_blank\" rel=\"noreferrer noopener\">Vid\u00e9o<\/a>)<\/li>\n<\/ul>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\">our publications<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Karen Ghoussoub et al<\/strong>. <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC12936249\/\" target=\"_blank\" rel=\"noreferrer noopener\">Stress Characteristics and Their Associations With Pain Intensity: An Ecological Momentary Assessment Study<\/a>.<br>European Journal of Pain, <strong>March 2026<\/strong><\/li>\n\n\n\n<li><strong>Adriana Angarita-Fonseca et al<\/strong>. <a href=\"https:\/\/journals.lww.com\/pain\/Fulltext\/2023\/02000\/The_Canadian_version_of_the_National_Institutes_of.15.aspx\" target=\"_blank\" rel=\"noreferrer noopener\">The Canadian version of the National Institutes of Health minimum dataset for chronic low back pain research : reference values from the Quebec Low Back Pain Study<\/a>.<br>Pain journal, <strong>February 2023<\/strong><\/li>\n\n\n\n<li><strong>Hugo Mass\u00e9-Alarie et al<\/strong>. <a href=\"https:\/\/journals.lww.com\/painrpts\/Fulltext\/2022\/04000\/Low_back_pain_definitions__effect_on_patient.11.aspx\" target=\"_blank\" rel=\"noreferrer noopener\">Low Back Pain definitions : effect on patient inclusion and clinical profiles<\/a><br>PAIN Reports, <strong>Mars 2022<\/strong><\/li>\n\n\n\n<li><strong>Kristina Amja et al<\/strong>. <a href=\"https:\/\/journals.sagepub.com\/doi\/full\/10.1177\/10497323211014858\" target=\"_blank\" rel=\"noreferrer noopener\">The Experience of People Living With Chronic Pain During a Pandemic : \u201cCrumbling Dreams With Uncertain Futures\u201d<\/a><br>Qualitative Health Research, <strong>June 2021<\/strong><\/li>\n\n\n\n<li><strong>Gabrielle Pag\u00e9 et al<\/strong>. <a href=\"https:\/\/journals.lww.com\/painrpts\/Fulltext\/2020\/02000\/The_Quebec_Low_Back_Pain_Study__a_protocol_for_an.5.aspx\" target=\"_blank\" rel=\"noreferrer noopener\">The Quebec Low Back Pain Study: a protocol for an innovative 2-tier provincial cohort<\/a><br>PAIN Reports, <strong>January 2020<\/strong><\/li>\n\n\n\n<li><strong>Ana\u00efs Lacasse et al<\/strong>. <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/28401140\/\" target=\"_blank\" rel=\"noreferrer noopener\">The Canadian minimum dataset for chronic low back pain research: a cross-cultural adaptation of the National Institutes of Health Task Force Research Standards<\/a><br>CMAJ Open, <strong>March 2017<\/strong><\/li>\n<\/ul>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Press release<\/strong><\/h3>\n\n\n\n<p><a href=\"https:\/\/qprn.ca\/wp-content\/uploads\/2023\/03\/Final-Press-Release_qlbps.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Press release<\/a><\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p><strong><a href=\"&#x6d;&#97;&#105;l&#x74;&#x6f;&#58;?&#x74;&#x6f;&#61;er&#x77;&#97;&#110;&#46;&#x6c;&#x65;&#99;l&#x61;&#x69;&#114;&#64;c&#x6f;&#x6e;&#115;o&#x72;&#x74;&#105;u&#x6d;&#x64;&#111;&#117;l&#x65;&#x75;&#114;a&#x75;&#x64;&#111;s&#x2e;&#x63;&#97;\" target=\"_blank\" rel=\"noreferrer noopener\">Contact us<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Scientists from the Quebec Back Pain Consortium have developed an infrastructure for collecting longitudinal data&#8230;.<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-7487","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/pages\/7487","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/comments?post=7487"}],"version-history":[{"count":3,"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/pages\/7487\/revisions"}],"predecessor-version":[{"id":21151,"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/pages\/7487\/revisions\/21151"}],"wp:attachment":[{"href":"https:\/\/qprn.ca\/en\/wp-json\/wp\/v2\/media?parent=7487"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}